CASE STUDY

Integration of Grey Matter’s PROP™ questionnaire into The Michael J. Fox Foundation’s Fox Insight clinical study

Fox Insight (www.foxinsight.org) is a dynamic online clinical study sponsored by The Michael J. Fox Foundation (MJFF) where more than 40,000 people with Parkinson disease (PD) and control volunteers are contributing data about their experiences and treatment through questionnaires and surveys. The study also allows participants with PD in the United States to contribute genetic data to the study. Fox Insight data are de-identified and made available to qualified researchers worldwide at

https://foxden.michaeljfox.org/.

Grey Matter Technologies developed a customized Parkinson Disease Patient Report of Problems (PD-PROP™) questionnaire for data capture through Fox Insight in March 2017.

More than 23,000 keyboard-entered PD-PROP™ reports (about 80,000 problems) have been captured as of February 2020, including about 15,000 longitudinal reports spanning up to three years of follow-up.  A voice-capture pilot study with Fox Insight participants also began in 2018. ​

(2018 Dataset)

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